Web Survey Bibliography
Background: Clinical research often lacks participants of young age. Adding to the small amount of scientific studies that focus on the population entering adulthood, there are also difficulties to recruit them. To overcome this, there is a need to develop and scientifically evaluate modes for data collection that are suitable for adolescents and young adults. With this in mind we performed 39 online focus group discussions among young survivors of childhood cancer to explore thoughts and experiences around dating, being intimate with someone, and having children.
Objective: The aim of the study was to evaluate online focus group discussions as a mode for data collection on sensitive issues among young persons with a cancer experience.
Methods: One hundred thirty-three young persons (16-25 years) previously diagnosed with cancer, participated in 39 synchronous online focus group discussions (response rate 134/369, 36%). The mode of administration was evaluated by analyzing participant characteristics and interactions during discussions, as well as group members’ evaluations of the discussions.
Results: Persons diagnosed with central nervous tumors (n=30, 27%) participated to a lower extent than those with other cancer types (n=103, 39%; χ 2= 4.89, P=.03). The participants described various health impairments that correspond to what would be expected among cancer survivors including neuropsychiatric conditions and writing disabilities. Even though participants were interested in others’ experiences, sexual issues needed more probing by the moderators than did fertility-related issues. Group evaluations revealed that participants appreciated communicating on the suggested topics and thought that it was easier to discuss sex when it was possible to be anonymous toward other group members.
Web survey bibliography - Journal of Medical Internet Research (32)
- Rates, Delays, and Completeness of General Practitioners’ Responses to a Postal Versus Web-Based...; 2017; Sebo, P.; Maisonneuve, H.; Cerutti, B.; Pascal Fournier, J.; Haller, D. M.
- Comparing Twitter and Online Panels for Survey Recruitment of E-Cigarette Users and Smokers; 2016; Guillory, J.; Kim, A.; Murphy, J.; Bradfield, B.; Nonnemaker, J.; Hsieh, Y. P.
- Methods for Evaluating Respondent Attrition in Web-Based Surveys; 2016; Hochheimer, C. J.; Sabo, R. T.; Krist, A. H.; Day, T.; Cyrus, J.; Woolf, S. H.
- Using Visual Analogue Scales in eHealth: Non-Response Effects in a Lifestyle Intervention; 2016; Kuhlmann, T.; Reips, U.-D.; Wienert, J.; Lippke, S.
- Participation in an Intensive Longitudinal Study with Weekly Web Surveys Over 2.5 Years; 2016; Barber, J. S.; Kusunoki, Y.; Gatny, H. H.; Schulz, P.
- Online Focus Group Discussion is a Valid and Feasible Mode When Investigating Sensitive Topics Among...; 2016; Wettergren, L.; Eriksson, L. E.; Nilsson, J.; Jarvaeus, A.; Lampic, C.
- Assessing the Effects of Participant Preference and Demographics in the Usage of Web-based Survey Questionnaires...; 2016; Mlikotic, R.; Parker, B.; Rajapakshe, R.
- Improving Inpatient Surveys: Web-Based Computer Adaptive Testing Accessed via Mobile Phone QR Codes; 2016; Chien, T. S.; Lin, W.S.
- Surveying End-of-Life Medical Decisions in France: Evaluation of an Innovative Mixed-Mode Data Collection...; 2016; Legleye, S; Pennec, S.; Monnier, A.; Stephan, A.; Brouard, N.; Bilsen, J.; Cohen, J.
- Effect of Web-Based Versus Paper-Based Questionnaires and Follow-Up Strategies on Participation Rates...; 2015; Kilsdonk, E.; van den Heuvel-Eibrink, M. M.; van Dulmen-den Broeder, E.; van der Pal, H. J. H.; van...
- Validity of Internet-Based Longitudinal Study Data: The Elephant in the Virtual Room; 2015; Pugh, C. A.; Summers, K. M.; Bronsvoort, M. C.; Handel, I. G.; Clements, D. N.
- Online Recruitment Methods for Web-Based and Mobile Health Studies: A Review of the Literature; 2015; Lane, T. S.; Armin, J.; Gordon, Ju. S.
- Response Rates for Patient-Reported Outcomes Using Web-Based Versus Paper Questionnaires: Comparison...; 2015; Horevoorts, N. J.; Vissers, P. A. J.; Mols, F.; Thong, M. S. Y.; van de Poll-Franse, L. V.
- Nonprobability Web Surveys to Measure Sexual Behaviors and Attitudes in the General Population: A Comparison...; 2014; Erens, B.; Burkill, S.; Couper, M. P.; C., Clifton, S., Tanton, C., Phelps, A., Datta, J., Mercer,...
- Evaluating a Web-based health risk assessment with tailored feedback: What does an expert focus group...; 2014; Vosbergen, S., Mahieu, G. R. Laan, E. K., Kraaijenhagen, R. A., Jaspers, M. W. M., Peek, N.
- Does Self-Selection Affect Samples' Representativeness in Online Surveys? An Investigation in Online...; 2014; Khazaal, Y., van Singer, M., Chatton, A., Achab, S., Zullino, D., Rothen, S., Khan, R., Billieux, J.,...
- Using Online Social Media for Recruitment of Human Immunodeficiency Virus-Positive Participants: A Cross...; 2014; Yuan, P., Bare, M. G., Johnson, M. O., Saberi, P.
- Online Survey on Twitter: A Urological Experience; 2013; Dal Moro, F.
- Internet-Based Recruitment to a Depression Prevention Intervention: Lessons From the Mood Memos Study...; 2013; Morgan, A. J., Jorm, A. F., Mackinnon, A. J.
- An Assessment of Incentive Versus Survey Length Trade-offs in a Web Survey of Radiologists; 2013; Ziegenfuss, J. Y., Niederhauser, B. D., Kallmes, D., Beebe, T. J.
- How Should Debriefing Be Undertaken in Web-Based Studies? Findings From a Randomized Controlled Trial...; 2012; McCambridge, J., Kypri, K., Wilson, A.
- Use of Web 2.0 to Recruit Australian Gay Men to an Online HIV/AIDS Survey; 2012; Theriault, N., Bi, P., Hiller, J. E., Nor, M.
- Web-Based Recruiting for Health Research Using a Social Networking Site: An Exploratory Study; 2012; Fenner, Y., Garland, P., Moore, E. E., Jayasinghe, Y., Fletcher, A., Tabrizi, S. N., Gunasekaran, B.,...
- Impact of Length or Relevance of Questionnaires on Attrition in Online Trials: Randomized Controlled...; 2011; McCambridge, J., Kalaitzaki, E., White, I. R., Khadjesari, Z., Murray, E., Linke, S., Thompson, S. G...
- Methodological Issues in Internet-Mediated Research: A Randomized Comparison of Internet Versus Mailed...; 2011; Whitehead, L.
- Development of a Web-Based Survey for Monitoring Daily Health and its Application in an Epidemiological...; 2011; Sugiura, H., Ohkusa, Y., Akahane, M., Sano, T., Okabe, N., Imamura, T.
- A Comparison of Psychometric Properties Between Internet and Paper Versions of Two Depression Instruments...; 2010; Andersson, G., Engstroem, I., Hollaendare, F.
- Response rate and completeness of questionnaires: A randomized study of internet versus Paper-and-Pencil...; 2007; Holm- Christensen, K., Hjollund, H. N., Basnov, M., Kongsved, S. M.
- Following Up Nonrespondents to an Online Weight Management Intervention: Randomized Trial Comparing...; 2007; Couper, M. P., Peytchev, A., Strecher, V., Rothert, K., Anderson, K. J.
- Will Web Surveys Ever Become Part of Mainstream Research?; 2004; Schonlau, M.
- Survey of Doctors' Experience of Patients Using the Internet; 2002; Potts, H. W. W., Wyatt, J. C., Pagerey, P. D.
- Using the Internet for surveys and health research; 2002; Eysenbach, G., Wyatt, J. C.